Grow On Windsor


A PERFECT PAIRING GIVE TODAY
Your Support Goes Even Further This #GivingTuesday!
Grow On Windsor 2022 is coming to a close and your support has been incredible. Because of you, the Windsor Cancer Centre Foundation can support the purchase of equipment and services to treat men living with cancer right here in our community. Today is #GivingTuesday, and Grow On Windsor’s donation platform, CanadaHelps, is giving an additional 1% boost on all donations made today. 
Give Today, and your support goes even further.

“As a father, teacher, and coach, I was always showing others how to fight and never quit. Lessons I’ve taught others have prepared me for this fight, and fighting cancer is the ultimate fight.”
-Jermaine Jackson, 2022 Grow On Windsor Ambassador. 
Your gift supports Jermaine, and all men living with cancer right here in our community. No one is in this fight alone. We Grow On Together. 
Donate Now & Boost Your Gift

Reminder – Support Group Meeting Tonight

Please join us tonight, November 8th, 7:00pm at Hospice of Windsor, 6038 Empress Street, Windsor. We ask that you simply sign in when you enter the building (sign-in is in the entryway). We are back to a pre-pandemic format. Masks are optional and COVID screening forms are not a requirement at this time. If you wish, please bring snacks as we have done in the past. 

For this month, we are very fortunate and pleased to have a presentation by Nancy Hannon, Windsor Regional Hospital (WRH) Social Worker.


Nancy worked at the Windsor Regional Cancer Program for 15 years.  She has her Bachelors of Social Work Degree (1990) as well as a Criminology Certificate (1990).  Nancy was in Children’s Mental Health for 16 years prior to the Cancer program.  She currently supports both out-patient patients and their families as well as patients in the Out-Patient Palliative Clinic.  Nancy is an active member of the Patient and Family Advisory Council (PFAC) Caregiver Support Committee as well as Cancer Care Ontario Sexual Health Committee and she supports patients and their partners with their sexual health needs.

Nancy will provide an overview of social work services within the cancer program, how to refer, how the social work program supports patients/families and caregivers and the importance of emotional, psychological and sexual support.  She will bring pamphlets and a resource for those that wish to take one. Please Join us!

November 8th Support Group Meeting

Tuesday November 8, 2022 Monthly Support Group Meeting at the Hospice (6038 Empress St.):

Our November monthly meeting will be at 7:00 pm on Tuesday 8 November at the Windsor Hospice.  For this month, we are very fortunate and pleased to have a presentation by Nancy Hannon, Windsor Regional Hospital (WRH) Social Worker.

Nancy worked at the Windsor Regional Cancer Program for 15 years.  She has her Bachelors of Social Work Degree (1990) as well as a Criminology Certificate (1990).  Nancy was in Children’s Mental Health for 16 years prior to the Cancer program.  She currently supports both out-patient patients and their families as well as patient’s in the Out-Patient Palliative Clinic.  Nancy is an active member of the Patient and Family Advisory Council (PFAC) Caregiver Support Committee as well as Cancer Care Ontario Sexual Health Committee and she supports patients and their partners with their sexual health needs.

Nancy will provide an overview of social work services within the cancer program, how to refer, how the social work program supports patient’s/families and caregivers and the importance of emotional, psychological and sexual support.  She will bring pamphlets and a resource for those that wish to take one. The Hospice venue is again available to us for this upcoming meeting.  Masks are no longer required, we just ask that all participants sign in when they enter the building (sign-in is in the entryway). COVID screening forms are not needed at this time. If possible, please bring snacks as we have done in the past. 

Future Planned Monthly Meetings
Don’t forget that our December holiday party will be at Royal Canadian Legion Branch 594 (Howard Ave.) on Tuesday 13 December, which is coincident with that Legion’s bi-weekly $10 all-you-can-eat spaghetti dinner.  This turned out to be a great venue last year. The Legion cordoned off our own hall and many members brought pot-luck desserts.  So please mark it on your calendars and start baking goodies for the event.  If you plan to go, please let us know so that we can get an idea of numbers.

For the upcoming 2023 winter meetings (February to May) the following doctors have indicated a desire to meet with us and provide a presentation:

Dr. Igor Gaisinsky  (Diagnostic Radiology);

Dr. Jonathan Peng (Radiation Oncologist); and

Dr. Ryan McLarty (Urologist), who is new to Windsor.

If there are other ideas you have for presentations, please let us know.


2022 Grow-On Campaign

The Grow-On Windsor 2022 campaign kicked off last Friday and continues through the month of November. Our team site is now set up and can be accessed at this link:

(https://www.canadahelps.org/s/nhzetE)

We would be pleased to have as many of you as possible as team members to spread the word to your family, friends and associates. Simply follow the above link and click on the “Join This Team” button.

If needed, Jim Fair can help if you run into any issues.

Awareness Presentations to Companies and Organizations – We have been giving awareness presentations to various organizations (VistaPrint, Royal Canadian Legion, CARP, etc.). If you are aware of any company or organization who might be interested in having us join a Health & Wellness presentation, please let us know. Thanks to Murray, Greg, Jim L., Guy, Noel, Brian, Don, Jim F. and Garry for helping out with these awareness activities. We have a good supply of our new brochures. Please pick up some at the November meeting to take with you to your medical professional appointments.

Hockey Games – We recently manned awareness booths at the LaSalle Vipers and the Lakeshore Canadiens hockey games and will be manning an awareness booth at the Windsor Spitfires game (12 November).  Thanks to Wayne, Garry and Jim for your help. If you are interested in participating, please let us know.

Golf Shirts and Baseball Caps – Golf Shirts and Baseball Caps with our new logo are available to order.  If you are interested in buying shirts ($30) or caps ($20), please let us know. Prices include all taxes and shipping costs.

Prostate Cancer Support Canada 2022 Virtual Conference – You can view recordings of the presentations and download any available slides by visiting this link: https://mailchi.mp/prostatecancersupport/2022pcvcday1.

Membership and Volunteers – If you are aware of other potential new members, please let us know.  We would also welcome women and others who are not survivors but who want to help.  If there are other areas that you would like to volunteer for, please let us know. Please get involved!!!!

Garry

Garry W. Loeper, CD, MScEng, PCIP, PMP, PEng

e-mail: gwloeper@gmail.com

cell: (613) 913-4799

Reminder – Support Group Meeting Tonight

Please join us tonight, October 11th, 7:00pm at Hospice of Windsor, 6038 Empress Street, Windsor. We ask that you simply sign in when you enter the building (sign-in is in the entry way). We are back to a pre-pandemic format. Masks are optional and COVID screening forms are not a requirement at this time. If you wish, please bring snacks as we have done in the past. 

Our speaker will be Jackie McCreary, who will speak to us on “How to Effectively Communicate with Your Healthcare Provider”, focusing on your rights and responsibilities as a patient. Jackie will offer us tips and hints on navigating the health care system, advocating for yourself, feeling empowered and learning better communication skills.

Jackie was an Obstetrical nurse at Met Hospital and has authoured a book “Food for Life, and for Thought”. She also owned From the Heart Boutique, for 32 years, serviing hundreds of women going through chemotherapy and needing hair replacement. 

Other Notes and News of Interest:

Wrapping up the 2022 Prostate Cancer Support Canada Virtual Conference
The 2022 Prostate Cancer Virtual Conference was a success with participants from all across Canada, the States, and even Malaysia and Tunisia!

We were proud to host incredible speakers from across the country including Dr. Richard Wassersug (How to Find Trusted Information), Dr. Linda Carlson (Managing Difficult Emotions with Mindfulness), Dr. Juanita Crook and Dr. Neil Dwyer (Ask a Radiation Oncologist and Urologist), Reanne Booker (Maintaining Intimacy in Partnerships Affected by Prostate Cancer), Justin Lorentz (Prostate Cancer and Genetics), Nicole Baba (Your Most Asked Questions: Incontinence, Sleep, Nutrition, Exercise, and More), Dr. Brian Goldman (The Power of Teamwork), and many more.
If you missed the second day of the Conference, you can find the recording on our YouTube channel by clicking here youtube.com/prostatecancerbc,
Using the ‘chapters’ on YouTube, you can easily skip between presentations to find the information that you’re most interested in.
Sign up for the Prostate Cancer Support Canada newsletter, Your Monthly Debrief, to ensure you’ll receive monthly prostate cancer support updates including: Upcoming support group meetings, webinars, conferences, and events Available clinical trials and research opportunitiesThe latest news in the Canadian prostate cancer support communityReminders to participate in our free exercise and yoga sessions
Sign up for the Prostate Cancer Support Canada newsletter
View some of our recent uploads by clicking on any of the thumbnails below.

New videos are uploaded frequently and can be accessed at our YouTube channel, youtube.com/prostatecancerbc, including the incredible ‘Six Stories: A Celebration of Men with Advanced Prostate Cancer’ forum. 
Donations are always greatly appreciated to help us continue our grassroots work with, and for, prostate cancer patients across Canada.
https://prostatecancersupport.ca/donations/

October 11th Support Group Meeting

Mitch Mason

July 01 1936 – September 19 2022

We are sad to learn of the passing of Mitch Mason, a founder of our group in 1994. Mitch served as Chairperson from 1998 to 2013 and devoted almost 30 years to helping others cope with, and navigate, their journey with prostate cancer. He remained an active member of your Steering Committee until recently, when he was afflicted with a significant non-prostate related medical  issue. He will be missed, but we will cherish our fond memories.

Mitch passed away peacefully at the age of 86 surrounded by his family. He will be forever missed by his loving wife Marian of 63 years. Loving father to sons Jerry and Jeff (Linda), grandfather to Trevor and Jacob, brother to Bernice (Russ), Walter (Katie), Helen (Rod), brother-in-law to Jerry (Marion). Predeceased by his loving parents Andrija and Ljubica Masanovich. Mitch will always be remembered for his outgoing personality and friendliness. Mitch worked for Weltronic and later for Centerline Welding where he thoroughly enjoyed calling on customers. He belonged to Club 55 and Prostate Cancer Support Windsor/Essex, was an avid sports fan, enjoyed exercising, and played AKO football.

A private Memorial Service will be taking place at WINDSOR CHAPEL (Central), thoughts and condolences can be made online at www.windsorchapel.com. Donations can be made to the Windsor Cancer Centre Foundation in memory of Mitch.

Tuesday October 11, 2022 Monthly Support Group Meeting at the Hospice (6038 Empress St.):

The Hospice venue is again available to us for this upcoming October meeting following an unforeseen staff issue that impacted last month’s meeting.  Masks are no longer required, we just ask that all participants sign in when they enter the building (sign-in is in the entry way). COVID screening forms are not needed at this time. If possible, please bring snacks as we have done in the past. 

This month’s speaker will be Jackie McCreary who is a cancer survivor and whose husband is a prostate cancer survivor.

She has given the talk many times: “How to Effectively Communicate with Your Healthcare Provider, (HCP),” which focuses on the rights AND responsibilities of the “patient.”  The HCP could be a physician, pharmacist, chiropractor, naturopath, specialist etc.

It is filled with tips and hints as to how to navigate the health care system, advocating for yourself, feeling empowered and learning better communication skills.

Jackie was an Obstetrical nurse at Met Hospital working Labour/Delivery and Postpartum.  From there she developed her own business educating women/ couples prenatally and postnatally.   As well she did labour coaching and taught a children’s prenatal class & pre/postnatal exercise classes.  She also was involved in many homebirths.

Jackie authoured the book “Food for Life, and for Thought” (Information and recipes for the Pregnant Family)

She owned a Gift, Card & Wig Boutique, From the Heart, for 32 years servicing hundreds of women going through chemotherapy and needing hair replacement. 

Jackie experienced cancer requiring surgery but it was determined that she did not need further treatment with chemotherapy.  Until that was determined, however, she felt the many concerns and fears that come along with a cancer diagnosis. 

We look forward to this presentation that should directly benefit those attending, but should also be equally valuable to arm those of us who may encounter those newly diagnosed who are dealing with the medical system. 

Remaining Fall Program – Nancy Hannon, who is the Windsor Regional Hospital (WRH) Cancer Program Social Worker, will be presenting to us in November.  It is our current thought to again have our December Christmas Party at Legion 594, which coincides with their spaghetti night on Tuesday 13 December.  This worked out well last year.  Please mark that in your calendars and let us know your thoughts.  If you have ideas for presentations for the winter months, please let us know.

Awareness Presentations to Companies and Organizations – Garry Loeper has be giving awareness presentations to various organizations. If you are aware of any company or organization who might be interested in having a presentation, please let us know.

Hockey Games – We recently manned an awareness booth at the LaSalle Vipers hockey game and will be manning an awareness booth at Lakeshore Canadiens (28 October) and the Windsor Spitfires (12 November).  If you are interested in participating, please let us know.

VistaPrint Health and Wellness Fair – We recently manned an awareness booth at the VistaPrint Health and Wellness Fair on 23 September.

Legion 594 Health and Wellness Fair – We will be manning an awareness both at Legion 594 (Howard Ave) on 23 October.

More Community Awareness Events – Please let us know if you have ideas for us to promote ourselves at other sports events, company health and wellness fairs, fundraising campaigns, and other community events, etc.  We need to get the word out and we need your help!!!

Golf Shirts and Baseball Caps – We are ordering Golf Shirts and Baseball Caps with our new logo.  If you are interested in buying shirts or caps, please let us know.  Shirts will cost $30 and hats $20.

Prostate Cancer Support Canada – Jim Fair recently attended the 2022 Prostate Cancer Support Canada Virtual Conference, which was excellent.  You may view recordings of the presentations and download any available slides by visiting this link: https://mailchi.mp/prostatecancersupport/2022pcvcday1.

Financial Manager – We are still looking for a financial manager to relieve some workload off current SC members.  If you are interested, please let us know.

Webmaster – We are still looking for a webmaster to relieve some workload off current SC members.  If you are interested, please let us know.

Membership and Volunteers – If you are aware of other potential new members, please let us know.  We would also welcome women and others who are not survivors but who want to help.  If there are other areas that you would like to volunteer for, please let us know.  As our networking campaign gains momentum, we will need more horsepower.  These are exciting times as we emerge from COVID stagnation!!!!  Please get involved!!!!

Garry

Garry W. Loeper, CD, MScEng, PCIP, PMP, PEng

e-mail: gwloeper@gmail.com

cell: (613) 913-4799

September – October 2022 News & Events

Prostate Cancer: Data, Statistics, and Incentives
(Why We Still Lack Answers to Important Questions)
SEPTEMBER 27TH, 2022 | 11:00am Pacific (2:00pm Eastern)
Examples of some important questions:
Is PSA screening for prostate cancer a positive public health measure?
What is the value of curative treatment to the individual patient or to the population at risk and how is it best measured?
Which of the several treatment variations are the most effective?
And does that even matter, given the rapidly changing patterns of practice?
The problem is that these are extremely difficult questions to answer. The ‘Why’ is interesting.
Join us for this intriguing discussion with:

Dr. William James Morris, BSc, MSc, MD, FRCPC
Radiation Oncologist, Vancouver Centre, BCCANCER (retired 2018)
Clinical Professor, Faculty of Medicine, UBC
Register Here
Partners in Prostate – Support Group for Partners
WEDNESDAY, SEPTEMBER 28TH, 2022 | 6:00pm Pacific (9:00pm Eastern)
Some say the impact of prostate cancer on the partner or caregiver of the patient can be just as difficult as the impact on the patient.

Partners, wives, husbands, girlfriends, and partners of all kinds are welcome to join this partners-only meeting. 

This group is a safe space for partners of prostate cancer patients to meet and share their thoughts, questions, experiences, and ideas with other partners. 
Register Here
Advanced Prostate Cancer
WEDNESDAY, OCTOBER 12TH | 4:00pm Pacific (7:00pm Eastern)
Advanced prostate cancer patients include anyone with cancer that has spread (metastatic), with a castrate-resistant cancer (no longer responds to first-line ADT), or with a high-risk or complex diagnosis.

Sign up for the Advanced Prostate Cancer mailing list to ensure you’re informed about upcoming meetings.

Register for the October meeting here. 
Active Surveillance Support Group
THURSDAY, OCTOBER 13TH | 4:30pm Pacific (7:30pm Eastern)
This group’s goal is to empower men newly diagnosed with low- or intermediate-risk prostate cancer to make informed decisions with their physicians on active surveillance as a non-invasive treatment option. 

Sign up for the Active Surveillance mailing list to ensure you’re informed about upcoming meetings.

Register for the October meeting here. 
Looking for local prostate cancer support group meetings?
Go to the Prostate Cancer Support Canada calendar here.

A Couple of Reminders

Tomorrow Night, September 13th, 7pm Monthly Meeting at Legion Branch 594 (5030 Howard Ave., Oldcastle, ON):
Mental health is one of our major themes for this fall. Several Steering Committee (SC) members have taken the Canadian Cancer Society (CCS) Peer Facilitator Training, and Nancy Hannon, the Windsor Regional Hospital (WRH) Cancer Program Social Worker, will be our presenter coming up in November. In keeping with this mental health theme, we are pleased to have Ed Kolar give a presentation on grief counselling for our September meeting, This should hopefully directly benefit anyone attending the meeting, but equally important, should equip us with some tools and techniques when providing Peer Support to the newly diagnosed and their loved ones.

Ed Kolar is a retired teacher and retired Pastor with decades of real world experience having helped hundreds dealing with grief. He is an exceptional speaker with a very dynamic style; his presentations are well received and always prove to be interesting, very relevant, and entertaining. On a side note, Ed is also a “Mad Scientist,” although not relevant to grief counselling, it speaks to his charismatic flair.

Please join us Tuesday, September 13th at 7:00pm

Also, please take advantage of the 2022 Prostate Cancer Canada Virtual Conference coming up this weekend. Details and Registration Link below.

A 2-day online conference and expo taking place on September 17th and 18th.

Join us for sessions with acclaimed Canadian healthcare providers, researchers, advocates, and professional facilitators including Dr. Brian Goldman, best-selling authour and CBC radio host of ‘White Coat, Black Art,’ Dr. Richard Wassersug, Dr. Linda Carlson, Dr. Juanita Crook, Dr. Neil Dwyer, and many more. 

The best part? It’s free and you can participate from anywhere you have an Internet connection.
 Save your spot for the 2022 Prostate Cancer Virtual Conference

September 13, 2022 Support Group Meeting

You can help us raise awareness about the #1 cancer in men by visiting the Prostate Cancer Support Canada Awareness Month website.

It’s a quick guide for what anyone can do to learn more about prostate cancer and raise awareness including:
social media posts you can share,
profile picture frames you can use on Twitter or Facebook,
links to send a free Reef Knot Kit to anyone in need – anywhere in Canada,
and more.

We hope you and your friends will take advantage of this fantastic resource to raise awareness about the cancer closest to all of our hearts.

Together, we can put the #1 cancer in men behind us.
I’m ready to raise awareness

Hello Windsor/Essex Members,

September 13th Monthly Meeting at Legion Branch 594 (5030 Howard Ave., Oldcastle, ON):
Please be aware that, unfortunately, the Hospice venue will NOT be available to us for this upcoming September meeting, due to an unforeseen staff issue. As an alternative, Legion Branch 594 has kindly offered one of their halls for us to use at no charge. This venue is great, with the added bonus of access to a cash bar. Also, the kitchen closes at 7pm, for those who want to show up early for a meal.

Mental health is one of our major themes for this fall. Several Steering Committee (SC) members have taken the Canadian Cancer Society (CCS) Peer Facilitator Training, and Nancy Hannon, the Windsor Regional Hospital (WRH) Cancer Program Social Worker, will be our presenter coming up in November. In keeping with this mental health theme, we are pleased to have Ed Kolar give a presentation on grief counselling for our September meeting, This should hopefully directly benefit anyone attending the meeting, but equally important, should equip us with some tools and techniques when providing Peer Support to the newly diagnosed and their loved ones.

Ed Kolar is a retired teacher and retired Pastor with decades of real world experience having helped hundreds dealing with grief. He is an exceptional speaker with a very dynamic style; his presentations are well received and always prove to be interesting, very relevant, and entertaining. On a side note, Ed is also a “Mad Scientist,” although not relevant to grief counselling, it speaks to his charismatic flair.

Please join us Tuesday, September 13th at 7:00pm

Remaining Fall Program – If you have ideas for presentations for October or the winter months, please let us know. It is our current thought to again have our 13 December Xmas Party at Legion 594, which coincides with their spaghetti night. This worked out well last year, where we also engaged a small band.
Please mark that in your calendars and let us know your thoughts.

In Other News:
We hope all of you have had a healthy and happy summer. While you have been frolicking on beaches and sipping on local wines, your Steering Committee has been very hard at work behind the scenes. Our main efforts have focused on networking with our stakeholders and partners with a view to expanding our community visibility. We deem this to be our main priority, to get the word out locally about our existence, in order to:
 Make sure the newly diagnosed and their families can access our support, which is our primary raison d’etre;
 Attract new members to enable us to achieve our goals, including providing peer support, as well as promoting awareness to the community; and
 Positioning ourselves to get in the face of the community, by attending events, and briefing companies and organizations.
The following summarizes some of the fruits of our labour:
 We have new brochures and a “marketing” banner stand for use with an awareness booth at sports events, company health and wellness fairs, fundraising campaigns, and other community events, etc.;
 We have been briefing organizations such as Legion 594 and the Canadian Association of Retired Persons (CARP), etc. We plan to brief many more;
 We met with senior UNIFOR management to help promote our group to employees of large companies;
 We connected with Windsor Spitfires, LaSalle Vipers, and the Lakeshore Canadiens, who are happy to have us man an awareness booth at hockey games this fall; and
 We met with key Windsor Regional Hospital Directors and Urologists, who plan to make sure our promotional material is distributed to Urologists’ offices, and make our existence known to all newly diagnosed.

Spring Get-Together at the Legion Branch 594 – The spring get-together was well attended and enjoyed by all. Since then, Legion 594 has engaged a new caterer with a much improved menu. If all agree, we would hope to repeat the event in the spring 2023.

Hockey Game Visibility – As mentioned above, we will be manning an awareness booth at Windsor Spitfires, LaSalle Vipers, and Lakeshore Canadiens hockey games this fall. If you are interested in participating, please let us know.

Vista Wellness Fair Visibility – We will be manning an information and awareness booth at the Vista Wellness Fair, a day long event for the Team Members of the Vista Windsor printing plant on Advance Blvd. on Friday, September 23rd.

We would appreciate some help, as this is an all day event covering three shifts, 4:30am-6:30am; 9:00am-1:30pm; and 5:00pm-8:00pm. If you are interested in participating, please let us know as soon as possible.

More Community Awareness Events – Please let us know if you have ideas for us to promote ourselves at other sports events, company health and wellness fairs, fundraising campaigns, and other community events, etc. We need to get the word out and we need your help!!!


Golf Shirts and Baseball Caps – We are ordering Golf Shirts and Baseball Caps embroidered with our new logo. If you are interested in buying shirts or caps, please let us know. Shirts will cost approx. $25-$30 and hats $15-$20


Financial Manager and Webmaster – We are still looking for a financial manager and a Webmaster to relieve some workload off current SC members.  If you are interested, please let us know.

Membership and Volunteers – If you are aware of other potential new members, please let us know. We would also welcome women and others who are not survivors but who want to help. If there are other areas that you would like to volunteer for, please let us know. As our networking campaign gains momentum, we will need more horsepower. These are exciting times as we emerge from COVID stagnation!!!! Please get involved!!!!

Garry

July – August 2022 News & Events

A reminder that we do not meet in July or August. Our next scheduled group meeting will be Tuesday, September 13th, 2022. Further details will follow. Enjoy your summer! If you need someone to talk to, please reach out to us at winexpcsg@gmail.com

A request from The Canadian Cancer Society:

Hello,

My name is Sasha Frost and I am the Sr Advocacy Specialist, Public Engagement for the Canadian Cancer Society. To better inform the Canadian Agency for Drugs and Technologies in Health (CADTH), the Canadian Cancer Society has launched a survey to understand the experience of people impacted by high-risk non-metastatic prostate cancer. High-risk means there is a greater chance of the cancer spreading. Non-metastatic means the cancer has not spread to other parts of the body. We are also seeking feedback on the advantages and disadvantages of the drug abiraterone acetate from those who have had experience with it. The patient or caregiver does not have to have experience with abiraterone acetate to complete the survey, as information on their satisfaction with current treatments is valuable on its own.  

Patients living with and beyond cancer as well as caregivers have first-hand experience of life with cancer and are well-positioned to describe the benefits and drawbacks of currently available treatments and help assess new treatments. Patient and caregiver feedback is critical and will help CADTH develop drug funding recommendations in Canada. This survey will help CADTH decide if they should recommend that abiraterone acetate in combination with prednisolone should be covered in Canada on public drug plans for people with high-risk non-metastatic prostate cancer.

If you have cancer patients or their caregivers in your network, we would greatly appreciate if you would share this new online survey. The survey is available in French and English. Please feel free to share this opportunity with patients, caregivers or other networks you are aware of to ensure patient voices are heard.

The survey will take about 15-20 minutes to complete, and the deadline for completion is July 31, 2022. Participation is completely voluntary and responses are anonymous. For more information, view our privacy policy. For more information about providing feedback on cancer drugs, please visit our page dedicated to this subject on cancer.ca. Please note that this survey is not to endorse any specific drug or treatment and is for evaluation only.

We will also be accepting testimonials from those who have high-risk non-metastatic prostate cancer who have tried abiraterone acetate outlining their experience with this medication. If you have someone in your network in this circumstance that would like to submit a testimonial, please let me know.

Thank you,

 Sasha Frost (She/Her) 
Sr Advocacy Specialist (Public Engagement) / spécialiste principale, Défense de l’intérêt public (engagement public)
Canadian Cancer Society / Société canadienne du cancer 

E Sasha.Frost@cancer.ca 
(905) 259-2721
55 St Clair Avenue West, Suite 300 / 55, avenue St. Clair Ouest, bureau 300 
Toronto, Ontario  M4V 2Y7 

It’s hard to believe it’s already July! Wishing you all a wonderful summer no matter where you’re enjoying it. Stay cool, wear your sunscreen, and don’t burn your BBQing!

Note that many support groups are taking a break for August; please check the support group calendar for the most up to date meeting info.
Prostate Cancer Support Coast to Coast
TUESDAY, JULY 26TH, 2022 | 11AM PT (2PM ET)
Dr. David Stewart, medical oncologist is the authour of new book, A Short Primer on Why Cancer Still Sucks

He has published more than 340 peer-reviewed publications. He has also published several Op-Eds in the lay press dealing predominantly with patient access to care, including an opinion piece published in the Ottawa Citizen 2022/06/21.

His areas of research interest have included (among others) resistance mechanisms to anticancer agents and resistance modulation, pharmacology and pharmacogenetics of platinums and other anticancer agents, new drug development and predictive biomarkers in lung cancer, the negative impact of dysfunctional regulation and clinical trial designs on the rate of clinical research progress, and the huge costs of this clinical research dysfunction in terms of increased health care costs and in terms of lives prematurely lost.Our monthly Coast to Coast support group meeting brings together prostate cancer patients and their support people across the country for an expert speaker presentation on varying topics each month, an opportunity for Q&A, and small group support group sessions via Zoom breakout rooms. 
Register now
Partners in Prostate – Partner-Only Support Group
WEDNESDAY, JULY 27TH, 2022 | 6PM PT (9PM ET)

Prostate cancer is commonly referred to as a couple’s disease, due to its impact on not just prostate cancer patients, but their partners as well.

Join us at this partners-only meeting for a chance to share about your journey and learn from the experience of others going through this too. First time attendees will be given priority to share. 
Can’t make it to a meeting? Check out the Partners in Prostate forum where you can chat with other partners 24/7.

Register now
Prostate Cancer Support Toronto
WEDNESDAY, JULY 27TH, 2022
4PM PT (7PM ET)

Dr. Di (Maria) Jiang MD, MSc, FRCPC is an Assistant Professor, Clinician Investigator  in the Department of Medicine at the University of Toronto and a Medical Oncologist in the  Genitourinary group at Princess Margaret Cancer Center.
 
She will be speaking on the Management of Advanced Prostate Cancer.
 
This session will feature a focus on the current standard of metastatic prostate cancer care and promising new therapies and clinical trials that are on the horizon. As well, it is hoped that a few myths about metastatic prostate cancer will be debunked along the way!
Register Now
Astellas announced reimbursement program for XTANDI (enzalutamide) for mCSPC (metastatic castrate sensitive prostate cancer) patients. Read more here
Click here for a list of research opportunities and clinical trials that have been shared with us this month.
Prostatepedia is a free publication that consolidates the latest research in prostate cancer. The July 15th edition is available here
The Life on ADT (Androgen Deprivation Therapy) online educational program’s next session will be at 3:00 pm Pacific/6 pm Eastern on July 18th and August 17th. More information available here.
Never miss another meeting, update, or opportunity:
Subscribe to Your Monthly Debrief here.
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Our mailing address is:
Prostate Cancer BC
4-17918 55 Ave Surrey, BC V3S 6C8 Canada

July 2022 News and Events

It’s Summertime! No Support Group Meeting July 11th. Enjoy your Summer.

If you need to talk to us, please email us at winexpcsg@gmail.com

Honora Bay, Manitoulin Island

University of Toronto Study Opportunity for Prostate Cancer Survivors

The Exercise Oncology Lab (PI: Dr. Linda Trinh) at the University of Toronto has an exciting study opportunity for prostate cancer survivors. The study is testing a distance-based program to help prostate cancer survivors sit less and move more. The study is all done in the comfort of their own homes and no study visits are required.

We are looking for prostate cancer survivors across Canada to participate in this study. We are wondering if the Windsor/Essex Prostate Cancer Support group would be willing to help spread the word about this study opportunity with its membership through email, social media, posting flyers, etc.?  

I have attached the consent form, recruitment flyer, and a link to the recruitment video for more information about the study. If you are able to help, we would be happy to provide e-mail templates about the study for you to advertise this research.

Recruitment video: https://www.powtoon.com/s/bIT5QNU61YS/1/m/s

If you have any questions, please feel free to reach out to our research team at the Exercise Oncology Lab at 416-946-5856 or at exercise.oncology@utoronto.ca

Thank you in advance for your time and consideration.

Lamisa

Lamisa Syed

Research Assistant

Exercise Oncology Lab

News & Events from Prostate Cancer Support Canada

Did you know that we offer free yoga classes for prostate cancer patients and their partners?

Fear, anxiety, and a heightened risk of depression and suicide are associated with prostate cancer diagnosis and treatment. It has been found, however, that yoga is beneficial for the overall quality of life of cancer patients, with regard to both mental and physical well-being. 

In a recent study comparing men with prostate cancer who practiced yoga with those who didn’t, those who practiced the yoga program saw improvements in their sexual, social, and physical quality of life when compared to those who underwent the standardized model of care. Other interesting results included better antitumor activity and a meaningful reduction in inflammatory cytokines in the yoga group.

These results indicate an overall improvement in the quality of life, immune response, and inflammation of newly diagnosed prostate cancer patients who practice yoga.

Butts in Yoga is a free, fun opportunity to improve your quality of prostate cancer. Get startedtoday!
Check out Butts in Yoga


Save the Date for Awareness month!
We’re very excited for you to join us for our 2022 Prostate cancer Virtual Conference.

This year, our Conference will take place over two days: Day 1 will focus on information for our support group leaders and anyone interested in leadership within the prostate cancer space, while Day 2 will be open to anyone interested in learning about the latest in prostate cancer research and quality of life. 

Save the date by clicking on the below link. It will take you to our support group calendar, where you can click on “Add to calendar’ and add a reminder for the event to your Google, Outlook, or Apple calendar!
Save the date for the 2022 Prostate Cancer Virtual Conference

Sign up for the Prostate Cancer Support Canada newsletter, Your Monthly Debrief, to ensure you’ll receive monthly prostate cancer support updates including:
Upcoming support group meetings, webinars, conferences, and events
Available clinical trials and research opportunities.
The latest news in the Canadian prostate cancer support community.
Reminders to participate in our free exercise and yoga sessions

Sign up for the Prostate Cancer Support Canada newsletter

Don’t forget that on our support initiative website, prostatecancersupport.ca, you can find:
calendar of upcoming support group meetings across Canada.
Specialized groups to meet unique needs:
Coast to Coast offers expert speakers on different topics each month
Partners in Prostate offers support to partners of patients
The Active Surveillance and Advanced Prostate Cancer groups offer support to those at opposite ends of the cancer spectrum: those with low-grade cancer and those with high-risk cancer
‘Your Monthly Debrief’ archive A growing video library of experts on topics from maintaining intimacy to upcoming research on treatments.

Get support at ProstateCancerSupport.ca
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