April 2021 Support Group Meeting

Please join us for our April Support Group Meeting via Zoom. We are pleased to bring you a video presentation by Dr. Danny Vesprini, Radiation Oncologist at Sunnybrook Health Sciences Centre, Toronto.

Dr. Vesprini is an assistant professor in the department of radiation oncology at the University of Toronto.

His clinical interests are in the treatment of prostate and testicular cancer, while his research interests include:

  • Prostate cancer prevention
  • Screening and treatment of BRCA1/BRCA2 mutation carriers
  • Identification of genetic biomarkers that predict aggressiveness and progression of prostate cancer in men followed on an active surveillance protocol.

In this “pre-COVID” presentation to Prostate Cancer Support Toronto, Dr. Vesprini dicusses “Active Surveillance Decisions (Why, Who, How, and When you know it’s time to be treated)”.

Time: April 13, 2021, 07:00 PM Eastern Time (US and Canada)

Join Zoom Meeting
https://us02web.zoom.us/j/87397943362?pwd=Ni9HZ0FBVUNzTy96OEhNQ3hjUVVHUT09

Meeting ID: 873 9794 3362
Passcode: 728264

“The Prostate Cancer Support Windsor/Essex volunteer group and its members strictly provide news, non-medical peer support, and awareness information about prostate cancer.  Neither the group nor its members provide medical advice, diagnosis, or treatment.  Any related communications or interactions including website news, content, or information; group meetings; individual peer support discussions; public awareness briefings; conferences; brochures; or otherwise are NOT intended to be a substitute for professional medical advice, diagnosis, or treatment.  Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.  NEVER disregard professional medical advice or delay in seeking it because of communications or interactions received from our volunteer group or members.”

Prostate Cancer Research Institute Conference

We thought you might be interested in a Prostate Cancer Research Institute (PCRI) conference via ZOOM coming up on Saturday March 27, 2021 from 1:30 pm to 6:30 pm EDT.

If you wish to join in, follow this link to register. https://pcri.us7.list-manage.com/track/click?u=e61bab2d681f6500ca8a92f0e&id=7e9c86e00d&e=6bff77d3f7

From PCRI: “This is an interactive online educational event for prostate cancer patients and caregivers. For this livestream, we are welcoming Thomas Hope, MD, of the University of California San Francisco who will present on PSMA Prostate Imaging, and Celestia “Tia” Higano, MD, from the University of British Columbia will present on Hormone Therapy and its side effects. This event will also feature a two-hour Q+A session with Mark Moyad, MD, MPH and Mark Scholz, MD, answering questions from the live online audience. We look forward to seeing you there!”

“The Prostate Cancer Support Windsor/Essex website and its members strictly provide news and awareness information about prostate cancer.  Neither the website nor the group members provide medical advice, diagnosis or treatment. Any news, content, or information from the website, group meetings, member peer support discussions, public awareness briefings, brochures, or otherwise is NOT intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.  Never disregard professional medical advice or delay in seeking it because of news, content, or information received either from the website, group meetings, member peer support discussions, public awareness briefings, brochures, or otherwise.”

March 2021 Support Group Meeting

Our thanks to our friends at Prostate Cancer Support Peterborough for allowing us to bring you a video presentation of their February 2021 Support Group Meeting featuring Dr. Stephen Holzapfel, MD

Presenter:  Dr. Stephen Holzapfel, MD, CCFP, FCFP Associate Professor, Department of Family and Community Medicine, and Deptartment of Obstetrics and Gynecology, University of Toronto

Topic: ‘There IS Sex After Prostate Cancer’

Time: Tuesday, March 9, 2021, 07:00 PM Eastern Time (US and Canada)

Join Zoom Meeting
https://us02web.zoom.us/j/87445820610?pwd=OWl3UG9XUFdWb2trNGROMHRrL1c0Zz09

Meeting ID: 874 4582 0610
Passcode: 355864

We encourage you to attend with your spouse/partner.

“The Prostate Cancer Support Windsor/Essex website and its members strictly provide news and awareness information about prostate cancer.  Neither the website nor the group members provide medical advice, diagnosis or treatment. Any news, content, or information from the website, group meetings, member peer support discussions, public awareness briefings, brochures, or otherwise is NOT intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.  Never disregard professional medical advice or delay in seeking it because of news, content, or information received either from the website, group meetings, member peer support discussions, public awareness briefings, brochures, or otherwise.”

Invitation to Prostate Cancer Canada Network Ottawa Meeting

From PCCN Ottawa comes this invitation:

On March 3, 2021 at 7:00 PM Luke Lewandowski will talk to PCCNO by ZOOM on Precision Medicine

Precision medicine is the development of personalized treatments for each patient. Precision medicine has treated and cured terminal cancer cases. Hear about initiatives at Canada’s health agencies using precision medicine techniques to treat difficult diseases and patients whose disease has advanced to a terminal stage. Patients with terminal cancers – prostate, colon, breast, pancreatic – have been treated successfully using these methods.

Gene editing technologies have matured from a hit-and-miss approach to today’s precision approach. CRISPR gene editing technology is precise. CRISPR can remove, alter or replace one or more genes in the human genome, to treat or cure diseases caused by genetic disorders, such as sickle cell anemia and Huntington’s.

This presentation discusses COVID-19 mRNA vaccines, how they were discovered, how they are made, and how they work. The benefits of mRNA vaccines are compared to those of conventional vaccines.

Luke has an Honours BMath degree from the University of Waterloo. He worked in the Information Technology sector and co-founded several companies; building the first shared ATM network in Canada, offering IBM Mainframe outsourcing, developing and selling software to Fortune 500 companies.

Luke has given over a hundred presentations at conferences, to potential clients, in workshops and seminars, and on cruise ships. He enjoys speaking and continues to do so for groups, clubs, charities, and other organizations.

Please register in advance for this presentation using the following link:

https://zoom.us/meeting/register/tJEtc-mrqjwpHdE7sNAphV0IiYDYCFmuXJAz

After registering, you will receive a confirmation email containing information about joining the meeting.

Upcoming Events

Locked down? Looking for something to do? Here are a few upcoming events that may be of interest.

Prostate Cancer Support Peterborough
invites you to a Zoom meeting.

Wednesday, February 17, 2021 07:00 PM EST

Presenter:  Dr. Stephen Holzapfel, MD, CCFP, FCFP Associate Professor, Department of Family and Community Medicine, and Deptartment of Obstetrics and Gynecology, University of Toronto

Topic: ‘There IS Sex After Prostate Cancer’
Register here in advance for this meeting:
https://zoom.us/meeting/register/tJElce2trTIvE9PUbXyM6LI8_am9mruB9D8W
 
After registering, you will receive a confirmation email containing information about joining the meeting.

Sponsored by Astellas Pharma Canada

We encourage you to attend with your spouse/partner.
For anonymous questions, forward questions ahead of time to 2451cs@gmail.com
OR
During the meeting, using ‘ZOOM chat’, questions can also come privately to the host who can read them to Dr. Holzapfel.

Please submit any questions to: 2451cs@gmail.com

Calvin Stillman, Co-chairman

Prostate Cancer Support Peterborough

*****************************************************************

Prostate Cancer Support Hamilton has a Zoom meeting scheduled for: Wednesday, February 24, 2021 at 7:30 pm

The Speaker is:  Dr. Michael B. Greenspan, Urologist, speaking about Continence and Sexual Dysfunction.

Dr. Greenspan has spoken to the group several times, and based upon their previous response, they anticipate there will be a good turn out on the 24th. Bring your questions.

Once you register, they will send you a Zoom Invitation Link on Wednesday, February 17, 2021 to join the meeting. If you want to register, please contact; pcsgHamilton@gmail.com.

The meeting will start at 7:30 pm, February 24th, but they would appreciate if you join the Zoom meeting between 7:10 and 7:25 pm. Please mark that on your calendar.

They welcome your spouses, partners, family or care givers.

All the Very Best. Looking forward to seeing you on the 24th.

Nick Vrkljan, Darshan Upadhyay & Dave Allatt.

Prostate Cancer Support Hamilton

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Call for Female Caregivers to Join or Help with “A Forum For Her” Support Group


The Us TOO call-in caregiver support group A Forum for Her was established for the women behind the men affected by prostate cancer. Because prostate cancer is a couple’s disease, the woman is often subject to her own concerns in addition to those she shares with her partner. A Forum for Her is a regular call series which focuses on women and offers important peer-to-peer support. Ladies – your role as a caregiver for a man with prostate cancer gives you an understanding and compassion for others who navigate this journey. We hope you have found support in many ways and have developed your own self-care strategies. Out of your experiences, maybe you have seen that others are looking for ways to connect, to be listened to and really heard, understood, validated, and encouraged. If you are ready to take a role in making these connections possible, we invite you to give us some information about your situation and possible availability. Our hope at Us TOO is that this year we might grow our options for caregiver support.
Would you join our team and volunteer? Let us know! Thank you for considering making a gift of your time and compassion! To register for any of our A Forum for Her calls, or volunteer to help, email terril@ustoo.org or call 336-842-3578 . CLICK HERE for more information on A Forum for Her . Warmest regards,
Terri Likowski
Us TOO Program Director – Support Group Services
and
Kathie Houchens
Volunteer Us TOO Prostate Cancer Caregiver Support Group Leader Since 2009

************************************************************************

Prostate Cancer Research Institute

To learn more about prostate cancer visit http://www.pcri.org The PCRI provides resources for prostate cancer patients and caregivers looking to gain understanding, insight, and hope. Get honest answers from science based data.

PCRI also has a variety of informative videos on You Tube. Check them out at www.youtube.com/user/ThePCRI

February 2021 Support Group Meeting

For our February 2021 Support Group Meeting, we were pleased to welcome our guest speaker, Joannie Jolin, who presented her talk

“My Personal Journey With Medical Cannabis”. 

Joannie retired in 1998 after 15-years as a Pyschotherapist in private practice, working with adult survivors of sexual abuse. At age 41, she enrolled at King’s College, The University of Western Ontario, graduating in 1983 with a Bachelor’s degree in Social Work. In 1988 she was accepted at the University of Windsor’s School of Social Work receiving four credits towards a Master’s degree. 

Joannie is also a writer and has been published a number of times in The Windsor Star and various newsletters. She self-published a journal, titled “In Her Room” about the passing of Guy’s niece, Nathalie, in 2000 at age 24. She has also written an unpublished journal, “Delight in the Little Things”, about our member, Guy, written while he was recovering from cancer.

Our thanks to Joannie for this informative session.

Prostate Cancer 101 Video

A plain talk discussion of Prostate Cancer featuring Denis in the starring role along with supporting performances by Jim, Don, Wayne, Noel and Greg. Surely worthy of award nominations!

Our thanks to Greg for coordinating and directing, and to Prostate Cancer Canada, Families First, Windsor Mold Group, Windsor Cancer Centre Foundation, WFCU Centre, and Windsor Spitfires for their support and participation.

Please feel free to share.

No Support Group Meeting in January

Just a reminder that we do not meet in January. We won’t be ringing in 2021 with any great celebrations, but we’re thankful that we are here to kick 2020 out the back door and welcome 2021 with hope for a year of renewal and good health. Happy New year to all of you!

If you missed our October Zoom meeting with Dr. Jeffrey Campbell, here’s an opportunity for you to catch his presentation to the London Prostate Cancer Support Group:

Wednesday, January 6th, 6:30 pm

London Prostate Cancer Support Group – by Zoom. Contact Carl Kelly for Zoom link details Carlkelly39@gmail.com, 519 852 4277

  • Erectile Dysfunction & Urinary Incontinence after Prostate Cancer Surgery
  • Dr. Jeffrey Campbell, Assistant Professor, Urology, Western University.

Here are some other January events that may be of interest to you:

Wednesday, January 20th, 7:00 pm

Prostate Cancer Support – Oakville/Mississauga      –  Next Zoom meeting. Meeting details will be sent out the week before.  www.pccn-oakville-mississauga.com

  •  Richard Casey, Urologist, Oakville.  What’s new in prostate cancer – with Q & A session.

Wednesday, January 27th, 7:30 pm

Prostate Cancer Support Toronto      – Next Awareness Night meeting – Dr. Urban Emmenegger – metastatic prostate cancer

Wednesday, January 27th, 7:00 pm

Prostate Cancer Support Hamilton – Next Zoom meeting – Dr. Edward Matsumoto, Urologist/Surgical Oncologist, St. Joseph’s Hospital Hamilton

To get on the mailing list, please contact : pcsghamilton@gmail.com

December 2020 Support Group Meeting

Please join us Tuesday, December 8th at 7:00 pm for our December Support Group Meeting. We’re not able to celebrate the holiday season in person this year, but please join us on Zoom for some holiday fellowship. There’s no formal program, just a get together to share holiday wishes. Enjoy your own refreshments and holiday snacks!

For those of you who are not yet familiar with Zoom, it’s really quite easy. Just download the Zoom App to your computer or iPad or phone. We’ll send you a meeting reminder, the day before our meeting, with a link to the Zoom meeting.

In the meantime, here’s another link to some helpful information from Zoom.

https://www.goucher.edu/learn/graduate-programs/distance-learning-resources/documents/student_documents/HowtoParticipateInAZoomMeeting.pdf

We’ll also bring you up to date on a few changes that we’ve had over the summer months. Your Steering Committee has been hard at work with a few initiatives during these crazy times. Join us on Zoom on December 8th for details.

Hope to see you there!

Looking for Survey Participants

We’ve been contacted by McGill University and McMaster University to assist with a couple of studies that they have underway. If you fit the parameters, for either one or both, please help out. Contact details are below. Thanks!

From Fatima Yashmin at McGill University:

Self-employed Cancer Survivor Study
We are seeking to interview self-employed cancer survivors who are remaining or returning to work following cancer. Considering the dearth of knowledge on this topic, the intent is to gather as many experiences from self-employed cancer survivors to be able to derive strategies to assist in overcoming barriers encountered.

You can share the advertisement attached with your support group or anyone that you believe will take interest. 

Thank you again for this kind gesture. Fatima Yashmin

From Shipra Taneja at McMaster University:

I’m a Research Assistant at McMaster University (Urology). I am working with Dr. Anil Kapoor from McMaster University on a quantitative study about Canadian urological cancer patient’s perceptions on cannabis. There is a research study being done through the Urological Cancer Centre for Research and Innovation in Hamilton, Ontario. 

We were wondering if your prostate cancer support group would be able to help us in recruiting participants for this research study by sharing our survey link. It is a one-time, 15-minute survey through RedCAP for urological cancer patients (kidney, bladder, prostate, testicular) to fill out if they are currently using cannabis. We are also not collecting any personal identifiers.

They are looking for patients who are currently using cannabis to fill out a one-time 10-minute survey to understand their attitudes and beliefs surrounding cannabis for cancer. If you are interested in participating in the study, please visit: https://rsjh.ca/redcap/surveys/?s=8MX9K33T7H 

Your decision to participate in this study will not be known to us, and no personal identifiers will be collected.
Thank you for considering this request. Shipra Taneja

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